At the Ronald McDonald House

Since Briley's appointment is 7:15 tomorrow morning, we decided to drive to Ft. Worth Wednesday afternoon and stay at the RMH. We've had our share of trips leaving at 4:00 in the morning. The earlier appointments usually involve a spinal tap. She is scheduled to have one tomorrow. As with any surgery, she is not allowed to eat or drink after midnight. So it's much easier letting her sleep in until 7:00 than it is getting her out of bed at 4:30 and telling her she can't have anything to eat or drink.

Of course all of this depends on her counts.

I'm glad we have a room at the RMH just in case we are here for the next 4 days. It's sad that this place constantly stays full. I believe they have plans to expand in the near future. The RMH is a good place. They ask for a donation of $15/night that of which I'm happy to pay. Different organizations or companies come every evening around supper time and cook everyone in the house a meal. For breakfast and lunch, they provided groceries to make your own meal. You clean up after yourself, vacuum your own room, clean the bathroom, wash the sheets on the bed, ect. Only bad thing about it, they don't have TVs in the rooms or if they do, you can only watch VHS tapes from that the RMH provide. Thank you ipad and Netflix!

Briley has been drawing a lot of attention with her bald head. We met a lady on our way to check in whose 22 month old daughter has a malignant brain tumor. I can't imagine that. As you may know by now, I don't sugar coat Briley's treatment or the way she feels at times. And I've said before, "yes, we have it bad, but we don't have to look far to see someone else a lot worse off than we are". Briley is going to be cured, not everyone in this house or in that hospital can say that. I know the pain that we have been through, but yet I can't even realize what some of these families are going through. One thing is for certain is that we can't help but feel a connection with some of these families. It's almost like a "club" or a "organization" that no one wants to join, but at the same time, it's one that we will always be a part of and one that we can give back to and most importantly, one where we can help others.

We will update more tomorrow as we know more. Thank you for your prayers. God bless everyone.