Friday, March 22, 2013

Pictures from Briley's last LP

 Briley in the middle of the LP.  She is getting a mixture of oxygen and nitrous oxide.  Alicia & Miss Amy are doing a good job keeping her occupied with the iPad.  This is why we love Cooks!  They take very good care of the kids and they try hard to make needle sticks as painless/scary as possible.  Even with the long needle going into her spine, she does not notice it and does not remember anything!

 Briley's last scheduled spinal tap!

Briley and Bryson having fun playing "I see" with the picture! 

Some reason, this is Briley's favorite part of the procedure!  She gets to decorate the mask with stickers while waiting and then chooses a flavor that she can smell during the procedure!  She loves the Rootbeer smell!  Once they turn on the Nitrous, she won't remember anything about the procedure!  Miss Amy, childlife specialist, is our favorite.  She is pictured holding the mask.  She's been so good to Briley over the last 2+ years and it's been a blessing to have her on the oncology floor.

The is a picture of Briley's very last chemo infusion.  It's called vincristine and it is partly responsible for her not able to run like kids her age should be able to do.  We are very happy that she won't be getting it anymore!  

Thursday, March 21, 2013

Briley's very last spinal tap!

Alicia, the kids, and I traveled down to Fort Worth last night for an early morning appointment today.  Briley was a champ like always during her very last spinal tap! She also had her very last chemo infusion today!  She also started the 5 days of steroids and I'm ready for that to be over with before it even started!  It's hard to believe that treatment is coming to an end.  We've been blessed in so many ways since her diagnoses that I don't even know where to begin.  
It was also confirmed today that her very last nightly oral chemo will be on the 30th of this month!  I didn't realize, but it's only 9 days away!  What will we do?  It's going to be a little weird just stopping chemo.  Just give her the last dose and that's it.  Don't get me wrong, it will be a happy weird, but still.
During her spinal tap today, we were talking to the nurses about everything she's been through.  We talked about other cancer kid's and their families and everything they've been through.  It's changed our lives.  I've changed.  Some for the better and some not.  
I am happy to report that Briley's friend, Lianna is completely done with treatment!  Lianna also had ALL and is a couple of months ahead of Briley in treatment.  We met her right after Briley was diagnosed.  We found out that Lianna was having surgery today to remove her port!  She had a complication with the removal when a piece of the catheter broke off in her artery.  They were able to fish the piece out of her heart and she's doing great!  She will soon have a victory party!  We are so happy for Lianna!  
Above all, we thank the Almighty God for blessing us with two wonderful kids and provided for our family throughout this ordeal. We want to thank all of you and many many more that has been there for us, prayed for us, and just cared for us.

Thursday, March 7, 2013

More Exciting News!

Today, we received word from the HopeWell Foundation that they will be sending us to Orlando, Florida for Briley's dream trip!  I can't begin to tell you how excited we all are!!!  We are scheduled for the trip June 2nd - 8th.  Briley's 6th birthday will be on June 7th!!  I'm pretty sure this will be one birthday celebration that she won't forget!
We will be staying at a place called Give Kids the World.  It's a resort of it's own!  If you are not familiar with GKTW, they fulfill wishes of children around the world with a great family experiences.  Wonderful people such as the HopeWell Foundation work with GKTW to provide a child's wish.  We will stay in a villa at GKTW (I bet we don't see much of the villa, other than a place to sleep!), and we will also have tickets to Disney World, Universal Studios, & Sea World!  The GKTW website has several videos of what to expect when you get there.  The kids have watched the videos nonstop that past couple of days!  They really get excited when they see the castle at Disney World, the Orca's at Sea World, and their favorite, ice cream for breakfast at GKTW!  Briley just can't believe that we get to eat ice cream for breakfast!  It's been 3 years since we've been on any kind of vacation, so I can't tell you how excited we are to have a trip of a lifetime!  
Changing gears a little bit, Briley had blood work done today to see how the increase in the nightly chemo dose has affected her counts.  Her ANC is 2600.  It's still higher than we like, but it's down from the count check 2 weeks ago.  Her nurse called and said to keep things the same.  She wasn't worried about it.
Briley will go back to Cooks on the 21st of this month for a LP, IV chemo, and start 5 days of steroids.  
God willing, everything will go according to plan with her treatment and the trip.  We appreciate all of the prayers.