Monday, January 21, 2013

2 years ago today......

2 years ago today, we were told Briley could possibly have leukemia.  She had battled the flu for two weeks, but she never really completely recovered.  She was very pale and had bruising in places where it shouldn't have been.  A quick doctor visit turned into lab work and then into our worse nightmare when we were told that Briley could have leukemia.  She would need to get down to Cooks quickly for further testing.  And so the journey began.....

Briley has been in the maintenance phase of chemo this past year.  Other than a fever scare here and there, all things went very well (the oncology side of things).  The treatment plan has gone as expected with no major delays, but most importantly, she has not been hospitalized for sickness!  I cannot say that enough!  Her immune system is still suppressed and will be until the end of treatment.  Any sickness would be very dangerous.  Just look at how much trouble a sinus infection caused!  We've been very blessed in that regard.  She continues to take chemo (6mp) every night, another chemo (methotrexate) once/week.  Bactrim 3 days/week.  Spinal taps with methotrexate injection and vincristine infusions once/every 3 months.  

This past year also involved the wreck.  Earlier today, I went back and read the blog from the time of the wreck in May.  I just assume to forget about it.  But the main thing is, she's doing great right now!  We're all doing great!  There are moments here and there, but all in all things are good.  Briley has been in very good spirits and her mobility is getting better by the day!

In the present, Briley and Bryson are both homebound. We are keeping them away from crowds.  Doing what we can to keep them from getting sick during this bad flu season.  Thankfully, the flu is starting to slow down some, but the stomach bug is going around in force.  Briley has a scheduled appointment at Cooks this Thursday, so maybe we can get a better idea of when she can go back to school.  In the meantime, the school is getting a "robot" for her from the district.  I don't know exactly what it's called, but basically it's going to allow her to have class with her classmates at home!  A robot will be in Alicia's classroom room.  It will have a camera and through the magic of technology, she will be able to see and hear her class at home on the computer.  Her "teacher" and the kids will be able to interact with her through this robot!  Really Really neat!  She's not sure about all of this, but I think she'll do great!  Of course she would much rather be in class herself!  We thank the school and the district for this opportunity!  

There's a couple of things that we are really looking forward to in the future!  #1 and foremost is the end of treatment!!  I think it will be sometime in June.  I am going to try to find out Thursday exactly when that will be.  All I know is that we will have a big party!  #2 and we are very excited about it, we will be taking a trip to Disney World.  I know we've been talking about it for a while now, and it seems like it's been one delay after another.  We've talked about going towards the end of Feb, but now that she's homebound, we might have to delay that a little longer.  Hopefully we'll be able to have a better time frame after the appointment on Thursday.  I will most definitely update more on it once we get it figured out.

Most of all, I don't know where we would be or how we could have made it through all of this without our faith in God. Sometimes we may not understand why, but we would be lost without faith, hope, and love.  Also,  I want to thank everyone for the outpouring of love and prayers over the past 2 years.  There's no words to describe how appreciative we are.  I hope a simple "Thank You" is adequate. THANK YOU!!

1 comment:

  1. Hi! Hostas Family:

    What a journey you have been through, and so much stronger than one would have ever imagined.

    How exciting that Briley get to access school with a VGo robot. She may want to name it the "Briley Bot"!

    Keep well!

    The Snyder's
    Gary & Jeanne'


Thank you for your thoughts & prayers for Briley! God Bless!