Monday, February 28, 2011
Sunday, February 27, 2011
We hope to be able to come home after tomorrow's treatment. We will update afterwards. Thank you for all of your support and prayers.
Friday, February 25, 2011
Briley has been doing so much better today. She has been laughing and giggling and she actually was able to walk to the play room! She said "my body feels good today"! She played all day! She was very happy to be coming home........well to Nana's house. The doctor said that it would be wise to get rid of the carpet in the house because it should help with her allergies. We don't want her coming home and getting sick like the last trip. That was a real wake up call as to how fragile she is right now. She gave us a big scare that night. Plus Bryson has a double ear infection and can't be around her right now. Hopefully we can get the new flooring in this coming week so Briley can be home soon.
While in town, I've had numerous people comment about stuff we put on the blog and on facebook and several people commented today on the video of the bubbles! It's really cool to know that many people care about Briley and are praying for her. Thank all of you for caring!
Thursday, February 24, 2011
Wednesday, February 23, 2011
Tuesday, February 22, 2011
Monday, February 21, 2011
The procedure went off without a hitch! Her doc came into the room later that morning and said that the marrow under a microscope looked great but we wouldn't know for sure about Briley being in remission until they get the results back from C.O.G on Wednesday afternoon or Thursday morning. Then she said something else we wanted the hear, "Briley's counts are up and you will be going home this afternoon"!!!!!
We rushed to pack everything in the hospital room and also at the RMH. Our car was packed full of stuff! As soon as I took off, a couple of toys from the back of the car fell on Briley's head. A little rearranging in the Walgreens parking lot and we are good to go!
We arrived in Seymour the a grand homecoming!!! The fire dept & EMS brought us into town with lights and sirens! There was so many people on the side of the roads seeing us in that it was unbelievable! We were truly amazed how everyone came together to welcome Briley home! Everyone had on their Team Briley gear as we drove past, waving and giving a thumbs up!!! We have never been so proud to live in Seymour, TX and we hope everyone feels the same! Briley was very excited and also shy. We will show her later in life the wonderful support that she had during this trying time. As we pulled onto the driveway, I had to pull back the tears. There was a big "Welcome Home Briley" sign on the house and many balloons outside as well inside the house. Many well wishers stopped by, gave us hugs and we shed a few tears together. What a wonderful way to come home!!!!
Bryson is a very happy boy this afternoon. He has clung to Alicia since she's been home. It's great having all 4 of us at home now, even if just for a short time.
We will post more about Briley's treatment plan in the next couple of days. We do know that the duration of the next phase of chemo is 7 months long.
We would love to have any pictures of the Team Briley homecoming and of anyone wearing the gear. Thank you for making today such a special one!!!!
Sunday, February 20, 2011
This beautiful dress was named for Briley Hostas! :) If you're not already of fan of Corinna Couture, you should like her page today on facebook- she has fabulous girlie dresses!
Saturday, February 19, 2011
Friday, February 18, 2011
Thursday, February 17, 2011
Wednesday, February 16, 2011
Tuesday, February 15, 2011
Monday, February 14, 2011
Sunday, February 13, 2011
Briley is finally fast asleep. She has a bacterial infection along with an ear infection. We should know more about it tomorrow. They are pumping anibiotics in her right now. She will be in the hospital for at least a week, but I suspect that they will keep her in here at least a day or two after her procedure on the 21st. The 21st will also be her last steroid treatment!!!! We can not wait! No more midnight snacks, 4 am snacks, 7 am breakfast, 9 am brunch, 10:30 brunch again, 3 main courses for lunch, and so on.
We would like to thank everyone that worked hard at the chicken fry in Rhineland today and thanks to everyone that went to it and got a belly full! We feel very inadequate trying to thank everyone, but just know it's very appreciated. Thank you so much! As difficult as it is to see your own going through something like this, all of you have made this journey so much easier for all of us!
Saturday, February 12, 2011
Friday, February 11, 2011
Thursday, February 10, 2011
Wednesday, February 9, 2011
Tuesday, February 8, 2011
Monday, February 7, 2011
Saturday, February 5, 2011
Friday, February 4, 2011
Briley has had an ok day today. We are now staying at the Ronald McDonald House. Briley went to the hospital today to make Valentine pizzas with her friend Gracie!! She has been really hungry because of the steroids, but a little nauseated. The steroids also make her irritable. She gets really upset, but she gets over it quickly. This will go away when she gets off of the steroids on Day 29. Hopefully all of the Leukemia will be out of her bone marrow then!! Thank you for the prayers. God has answered so many of them!! Please keep them coming!!
Thursday, February 3, 2011
Wednesday, February 2, 2011
Briley has felt great so far today!! She has been to the playroom, and played instruments with Gracie during music therapy!! She also helped paint for the Super Bowl party tomorrow. Roger Stauback and Michael Irvin are supposed to be here!! Her counts looked good today. Her blast count went from a 12 to a 6, so hopefully tomorrow it will be gone. It's being stubborn. She missed being in the low risk chemo group by a small amount. The Leukemia count in the blood had to be less than 0.01% and hers was 0.015%. She will now hopefully be in the standard average risk group if there is no Leukemia in the bone marrow by Day 29. We are on Day 10 now, so please pray that her body fights off the Leukemia quickly. Her ANC count, this measures her ability to fight off infection, was 192 today. Yesterday it was 72. The doctor said this is a good indicator that the Leukemia is being killed off in the bone marrow, and the bone marrow is starting to produce good things. We just have to keep praying that the chemo keeps working, and that her body is able to fight off this disease. Thank you for the prayers!! God is great!!